Saturday, January 14, 2012
What if Hailey needed a transplant?
Yesterday I read a story on my facebook about a little girl. A little girl, much like Hailey. She has a disorder that causes cognitive impairment...and she will need a transplant. Please click here and read this, like I did. Then like I did, get outraged. Can you imagine if Hailey was denied a transplant because someone else decided what her quality of life would be?
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Hi Hailey's Mom, I have been sitting at my computer working on a paper for one of my medical classes (doing my paper on cri-du-chat) and i came upon your blog. Lucky me, you see, I too am a mom to a charismatic, dramatic, amazing, beautiful little 10 year old girl with cri-du-chat. So imagine my surprise when i start reading about you and your amazing Hailey......I have already gone thru a variety of emotions while reading, I have laughed, cried, been pissed, and sentimental.......your good! ha, ha. I love your stories, and have been right there with you in many instances, if you feel the need to reach out, please feel free....agillum5@gmail.com my name is Aimee and my daughters name is Lexi. Take care, and give Hailey a huge hug from me.
ReplyDeleteHi Aimee! It's great to hear from you. I will send you an email. I love that our girls are the same age :-)!!
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