Friday, March 9, 2012

Swallow Study Number 3

Hailey has a swallow study this morning.  We have been anxiously waiting for this one.  Well, to be honest, we waited anxiously for the last one too.  It took Medi Cal a little longer than it should have to approve the study this time.  I guess there is no precedence for having 3 of them in a 6 month period of time.

But the thing is that 6 months was the magic period where the botox was supposed to wear off and low and behold...It appears that it has!!  So this one is much anticipated because she has been eating so much more by mouth now and we are down to 3 feeds a day instead of 6.  We are really hoping that this study will show that she is swallowing just fine.

I know that she will have to go through feeding therapy and she will have to learn how to slow down and chew again.  I know that we will still have to use the g tube and that a good swallow study will not mean that she is good to go all the way...But it's a great step in the right direction.

So here sits one mama who is trying hard not to get her hopes up too much...but can't seem to keep her head out of the clouds!!

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